Monthly Conference Call
Please join us every 1st Monday of the month for our Monthly Conference Call
Zoom Meeting
Monday, February 3, 2025
5 pm Eastern Time
Zoom Invitation is listed at the end of this announcement
Final Agenda
A Contextual Analysis of a Swiss Model of Transition from Pediatric to Adult Rheumatology as Part of the Heroes (Rheumatology Transition for Young People in Switzerland) Study
Séverine Soiron, MSN; Sandra Staudacher, PhD; Natalie Tarr, PhD; Marlis Matter, BSN; Andreas Wörner, MD; Thomas Daikeler, MD; Mary-Louise Daly, Msc; Lut Berben, PhD, RN
Lut Berben, PhD, RN
University Children’s Hospital Basel
Basel, Switzerland
Improving outcomes through age-specific data disaggregation and defining young adults as a distinct demographic in research
Sydney Reed, B.A.
Operations Director, Generation Patient
Other Agenda Items.
1. Follow-up 16th Annual HCTRC Research Symposium
2. Preview of 17th Annual HCTRC Research Symposium
SAVE THE DATE!
17th Annual HCTRC Research Symposium
Wednesday October 22, 2025
Dan and Jan Duncan Neurological Research Institute
Houston, Texas
Waisman Center’s Health Care Transition ECHO virtual training series
Registration is now open for the Waisman Center’s Health Care Transition ECHO virtual training series. This free, national 5-session series will be offered January to May 2025 11:30am – 1:00pm CST on the 2nd Tuesday of each month. Health care transition (HCT) is the process of preparing youth and young adults for the transition to a healthy adulthood.
This ECHO is for health care providers across the US who work with youth and young adults with intellectual and developmental disabilities. This includes primary and specialty care providers, advanced practice providers (NP/PA), nurses, social workers, and any other provider interested in health care transition.
Participants will learn and share strategies to support youth and young adults with intellectual and developmental disabilities to direct their own transition from pediatric to adult care and a healthy adulthood. Topics for this round include:
- Working with Schools on Health Care Transition
- Health Care Transition Services for those with Medical Complexity
- Mental Health Barriers and Options during the Transition to Adult Services
- Payment for Health Care Transition Services
- Role of Families from Different Cultures in Health Care Transition
To learn more visit: Health Care Transition for I/DD ECHO – Waisman Center – UW–Madison
Project ECHO® is a learning framework designed to build capacity of professionals and community members to provide evidence-based services. Led by a multidisciplinary team of experts, ECHO participants engage in a virtual community with their peers where they share knowledge, support and feedback. Continuing education credits will be available! Please share with anyone who may be interested.
Please contact us at [email protected] with any questions.